Overheard at Our House

Channing and Christian are sitting on my bed. Channing is 'reading' his Bob the Builder book to Christian.

"One day Bob the Builder gave Wendy a big hug. It was a Perfect Day."

The End.


I agree. Hugs make for a perfect day.
:)

Gratitude

NOTE: I wrote this up back during our stay in the hospital. I never got around to posting it, but reading through it again brings such strong emotions to the surface- I wanted to share my testimony of God's love with any who might read this.

*******


I have felt such an overwhelming sense of gratitude during this whole ordeal with Christian. Sunday we attended a very brief sacrament meeting at the hospital. It was an amazing experience.
Upon walking in, I felt such a strong, special spirit there. Only those presiding/conducting/presenting were in Sunday dress. The rest of us were in casual street clothes and hospital gowns. Its likely that very few of the attendees had spent more than 5 min 'prepping' themselves. Some of us hadn't even looked in a mirror for a few days. All of us felt heavy burdens.
We looked exhausted, beaten, needing the uplifting we had faith we would receive. All of us were so concerned, so focused on the little ones we were there for that our personal selves simply faded away. The lucky ones of us had our little ones sitting beside us. Several of us didn't.

As I sat there with my sweet boy, the prelude music played sweet primary songs. I looked around- seeing the remarkable, humble people- I felt privileged to be in their company. A few kids were hooked up to IVs, a few in wheelchairs.

I felt so strongly the purity of children. It was as if the Savior was to be anywhere, he would be here. Here with his younger brothers and sisters. Here with the suffering, the weak.

As I looked around, I wondered at the stories of each person there. What circumstances brought us here together. And I felt strongly that Heavenly Father knows. He knows each of us, what we're going through- and He cares. He cares so much. He knows EACH of us. Individually. Personally. He loves us.

I am full of such tremendous gratitude for my life- this very point of time. While I would not wish the pain and agony on anyone, I am grateful for it. I am grateful for my husband, for his love and support. I am so very, very grateful for his job and for his incredible employers- for their loving understanding- that he is able to take off so much time to come up and be with us.
I am grateful that he loves me, that he is in such pain over our son- because he loves him.

I am grateful for a huge family support system. For a mother in law who, without question is watching Chan and anna- for what was 'possibly going to be an overnighter'- which has now lasted nearly 2 weeks. I am grateful for my parents- their huge concern, their prayers.

I am so, so grateful for a sister who dropped everything and DROVE ALONE with 2 kids from Washington state to be a support to me. Who has come to visit me every day that Patrick has been gone. I am grateful for a sister in Texas who was wanting to do the same.

I am grateful for brothers and their families who have come to visit- to cheer Christian and I. Who are doing their best to love and comfort.

I am grateful for a ward who has united in a fast for our little boy.

I am grateful for so many friends who are letting us know of their love. Who are offering prayers in our behalf.

I am so grateful to be alive now. Today. For the medical and technological advances which have been made that allow my son to be helped.

I am grateful for my Savior. That he died for me. For my baby. That because of Him- because of His love- regardless of how this all turns/ed out- I will have my baby with me forever. I will always be able to be his mama. That one day Christian's body will return to its perfected state. That he will walk again, play again. That he will be completely seizure free- because he will be perfected. As Christ is.

I am grateful especially that God has blessed me to be able to feel gratitude at this time. Things could be so, so much worse. I am grateful for the closeness to heaven that I have been able to experience here in this white, hospital room. For the closeness of my Savior. For his arm around me. Around my boy.

I am grateful.

FAST

Dear friends/family/any other random people that may happen to read this Blog-

We would like to invite anyone/everyone to join us in a special fast on Christian's behalf this Sunday, Nov. 7th.


Our ward had the very special opportunity to fast for a little baby (the grandson of a member of our ward)- as one Priesthood leader stated- it was a "special opportunity to be a part of a miracle"- I love the faith that that shows. And I loved being a part of the miracle of the boy's healing. It was such a special experience, and I felt such a love for this baby that I had never met.

I hope and pray for such a miracle with our own sweet boy.

Update

We took Christian in to the ER at PMCH last night, thanks to them being booked till March 3rd, (yes, March) and "Urgent Needs Only" booked for several days out. Things have gone downhill so much and so fast, with no medications working, that they wanted us to come in immediately.

We were admitted overnight, and P took the drive between "Up North" and Gunnison for the 3rd time in 24 hours. rough. :(

(thanks Mom S for watching our younger babes for us!)

Christian had a really rough night again. He was completely drugged up: dose of Pheno, dose of keppa(?), dose of ativan. Kept having seizures. Much talk with the neurologists and the dr. gal working with us overnight said the neuro was like "what?? He's STILL having them??"....comforting. :/

He's to have another MRI, which they were hoping to do this morning (poor kid hasn't eaten in a long time.- little kids need to fast for 8 hrs prior to and MRI so they can be sedated) BUT, the first MRI opening is for 5pm today. They ppl working with us are going to see if they can get it bumped up at all, so we'll find out about that here in a bit.

Kid is the sweetest, sweetest guy. He's totally exhausted (and drugged up) so he goes back to sleep right after a seizure. He finally was 'seize-free' from about 3:30-7, and I was able to sleep from about 4:10-7, my extent of rest for the night.

A funny thing: he's all dressed in this cute little mini-hospital-getup. It's pretty dang cute. (and brings out the blue in his eyes! :P) He wanted a bag to put some of his treasures in. I told him we needed to wait 'til the nurse came and then he could ask her. So he was kneeling, playing on his bed and would call out in a goofy voice "nuuuuuurse. nuuuuuuurrrrrrse!" It was super cute. The gal sitting at the desk outside our door was quite enamored, told him she wasn't his nurse, but that she would be happy to do anything for him. :)
He got his bag.

They've been really good to us here and I'm so glad we finally took the ER route, were admitted, and have been able to have him monitored so extensively. We'll be meeting with a team of Neurologists and even the Supervisor to the neurologists later. They're set on helping us get things under control and our little guy the help he needs. Yesterday I was quite the wreck, but its really good to be here and to be getting the help we need.

UPDATE: He'll be having an EEG here within the hour (hopefully) and the dr. I just spoke with said we'll be here definitely another night.

hm. Stinky underwear much? :S

So. This is jumbled, gargled, and completely un-worthy of any literary-feelings-of-pride, but its an update. And I haven't slept. In many nights. So there.

Where we've been

Running. Lasers. Blast off.

Singing. Scripture memorizing. Speaking into the Microwavephone.

Sweetest Sunbeam I know.

Best big brother. Snuggling with Anna.

Lightning McQueen. Sally. Doc.

Ironing Man.

Mr. Concredible Hulk Glubs.

Wanting a Dunk Tank for birthday.

Soccer Star. Football Player. BYU blue through and through.

Picnics in the living room.

Alphabet airplane.

"Who's coming for dinner?" "Who can I eat dinner with?"
Social Man.

Tents on the bunk bed.

Lightning McQueen Boots.

Yellow Car Pottery Barn Designer.

Buzz Lightyear, HeMan, Sword in shirt.

To the Rescue!
-------

Wake up. Crying. Trembling. Pupils dialated.

Help me, help me! I'm Falling!

Left side paralysis.

Loss of balance.

2 days fine.

Trouble again.

Head to Primary Children's Hospital.

Seizures of some sort.

CT scan good.
Sigh of relief.

EEG- abnormal.

Medications not working.

Increase dosage.

No improvement.

Increase in frequency. 12+ in one day?

No sleep.

Afraid to fall.

Playing with cousins, Soccer field. Race between Ironing Man and Buzz.
Face on the ground. Body tremors.

Cousin asks "Does your brain hurt?"
"I don't think so."


At the zoo with Papa and Grandma.

Need to Potty.

Seizure.

Get to bathroom.

Doesn't go.

Head back.

I hear him whine that he needs to potty. I'm frustrated. Kneel down to talk to him.

"It's bumpy, mama. My walk is bumpy."

Can't walk well as a result of seizure.

Heart breaks.

2 weeks.

Prayers.

Pleading.

Feeling Weak. Trying to be strong.
It's a front.

Sleepover in Mommy and Daddy's bed.

4 seizures.

5 seizures this morning.

Waiting for the doctor's call.
MRI result.

Waiting.

Playing with sister. Playing with brother.

My angel boy.

My Christmas Gift.

4th Bi-Annual (but-sometimes-we-get-off-schedule-and-its-annual+semiannual) Hadfield Family Reunion

(yes, that is how they slept every night)


This year we had our Hadfield Family Reunion at Zion's Nat'l Park.

It was pretty awesome.

Highlights/Lowlights:
-Flash Flood/thunderstorm
-Mudpit in the middle of our campsite
-sweating so much you can't sleep
-our ridiculously-small-tent-not-meant-for-2-adults-and-3-kids-even-if-it's-called-a-3-4-man-tent
-being able to see the stars perfectly under the netting of our tiny tent
-FINALLY getting some rest/coolness on a blissful tram ride
-escaping for an hour+drive around the canyon in my dream mini-van w/ 4 zonked out little boys. (no, I wasn't driving. I came along for the AC.)
-incredible sacrament meeting with my amazing, amazing family. And a wonderful testimony meeting. and loving my family with my whole guts.
-thoroughly rockin' Variety Show. And my brother(mildly shocking us all) in a hulu- skirt- wig and skirt. (no coconuts, though. Maybe next time?)
-hearing my niece belt it out at said talent show
-doing skits with my nephews/niece.
-Giant Family Birthday Party
-Amaaaazing food. Seriously. Yum.

-Coming in full agreement that next reunion needs to be AC'd? Priceless. :)


Grandkids #s 11 & 14. (anna is 18)






Hello, GQ




Thanks, fam. Glad we're in this thing forever. :)

What Kind of a Mother....

finishes up a preschool party with 3 boys running around unstringing yarn ALL over the house, lets the 2 year old run around with JUST (and yes, I mean JUST) his Curious George pj shirt, goes outside to chat with a mom(and dear friend) , while the 3 year old and 4 year old friend ride bikes, and the 2 year old is now running up and down the sidewalk wearing 2 different sized Buzz-Lightyear-tennis-shoes (on the wrong feet) and still JUST his pj shirt- all while saying how bad it probably is to allow the 2 year old to be streaking, yet loving it all the same- for about 15 minutes...and then only regrets not getting a picture of the crazily adorable 2 year old?